Giving people back their lives!

Dr. Paul Harch Treating CADASIL with Hyperbaric Oxygen Therapy

A Louisiana Based All-Star Music and Food Benefit for Charmaine Neville

Charmaine Neville was Diagnosed with CADASIL, this is her story of treatment that helped her get her life back.

WWL TV Documented her Hyperbaric Oxygen Therapy treatment administered by Dr. Paul Harch of West Jefferson Medical Center.

 

To see a short Video about Charmaine Neville, Dr. Harch, and HBOT treatment for CADASIL Click this picture.

To see a short Video about Charmaine Neville, Dr. Harch, and HBOT treatment for CADASIL Click this picture.


Meg Farris / Eyewitness News
Email: mfarris@wwltv.com | Twitter: @megfarriswwl

NEW ORLEANS - She brings her New Orleans style of entertainment and music to fans around the world. But suddenly, singer Charmaine Neville noticed she was not acting like herself.

Numerous hospital visits and exams left doctors baffled.

But then a phone call turned her fate around and our cameras chronicled that journey.

She's known for her high energy, dance moves and voice. But last year, the well known singer and entertainer knew something was terribly wrong.

"I've been on stage and been so confused, I didn't know who my musicians were. I didn't know what I was supposed to be singing, songs that I have sang my whole life and I didn't know the words to the songs. I couldn't remember how to dance, couldn't remember how to play percussion or drums or anything," said Neville.

Her second home, the stage, became confusing and unrecognizable.

"I didn't know what was wrong. I thought I was gonna die," she recalls.

Neville became weak, dropped 30 pounds, had severe headaches and outbursts. She even forgot to feed her beloved pets, and herself.

"I had put something on the stove so I could fix myself something to eat and I went upstairs and I forgot about it and almost burned the house down. And my son moved back in with me to help me out because I was afraid I couldn't even walk down the steps," Neville said.

Then one day last year, I got a phone call from a mutual friend Donna Duhe'. She was crying, saying that once again Charmaine was in the hospital. This time there was a diagnosis though. It was a brain condition nine words long that is called CADASIL syndrome for short. That is an acronym for cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy. It's the most common form of a hereditary stroke disorder that progressively gets worse. Doctors said there was nothing that could be done to help her.

"She has sensory symptoms. She has motor problems. She has balance coordination. She has cognitive complaints. She has a constellation of them consistent with the fact that it has affected her whole brain," explained Dr. Harch.

See the full story Click the picture above.

 

 

The Louisiana Based All-Star Music and Food Benefit took place

Sunday June 24th 2012 at the
Westwego Farmers and Fisheries

WHAT A PARTY IT WAS!

Charmaine Neville expresses her gratitude for the Benefit Consert to treat CADASIL with HBOT

 

Charmaine Neville who was recently diagnosed with CADASIL syndrome, and is currently receiving treatment is the reason for this once in a lifetime event.  Funds raised by this Benefit will go to pay for future treatment for Charmaine, and to help her recover from being unable to fully support herself since the onset of her illness.

Charmaine is so happy to once again be able to perform with her Charmaine Neville Band, and the benefit concert will surround her with the very best music of the South. 

 

The Red Hot Brass Band

P. E. Gilligan - Master of Ceremony/Singer

  • Charmaine Neville Band
  • Dr. John
  • Kermit Ruffins
  • The Young Neville's: Damion, Ivan, Cyril, &
    Athelgra Neville
  • Don Neville
  • Jo-El Sonnier
  • Kim Carson
  • Jean Knight
  • Rockin’ Dopsie                   ●●  George Porter (The Meters)
  • Deacon John Moore
  • Al "Carnival Time" Johnson
  • The Treater Band
  • Davelle Crawford
  • Guitar 'Lightin’ Lee
  • Donald ( Lit'l LaLa) Morgan
  • Smokey Greenwell & James Andrews
  • The Southern Groove Band: Ronnie Boudreaux,
    Will Cooper, TJ Dewey, & Jules Albarado
  • Richard Banquer
  • Duane Schurb, Aaron Foret, Skeeter Thomassie
  • Cool Breeze: Al Bemiss, Michael Pierce, & Michael Harris
  • Ryan Foret & The Foret Tradition
  • Danny Alexander

 

All proceeds from food sales, and a portion of beverage sales, will go to pay for Charmaine Neville's treatment.

Representatives of the West Jefferson Medical Center will be present at the concert, doing outreach about CADASIL syndrome. Charmaine's treatment is being directed by Dr. Paul Harch of West Jefferson Medical Center, who is head of Hyperbaric Medicine and Wound Care at LSU Health Sciences Center. 

Event produced by Cleo Banquer and Christy Boudreaux, with generous assistance from local attorney Chip Forstall and several vendors.